Saturday 7 May, from 6:30pm
The ACE launch party is to not only raise awareness of Spinal Muscular Atrophy (SMA) but also to raise a significant amount of money to kickstart a research project with Oxford University. Your support will provide a fantastic foundation to the funds that we need to kick off this exciting, novel and world leading research that promises to make a huge impact on the lives of all children born with SMA.
All monies raised will go towards the clinical trial ACE SMA is running with Oxford University.
18.30 – Drinks Reception with Canapés
20.00 – Dinner by Tom Bray from Country Fire Cooking
21.00 – Live Auction
21.20 – Dancing – Music by ALR Live
01.00 – Carriages
Included in the donation is a welcome drink, dinner and wine. Other drinks can be purchased at the event, there will also be a pay bar throughout the event put together by Soulshakers London.
Mike and Sophie Howes set up ACE SMA to help other children who have had treatment reach their potential and enable them to take part in as much exercise as they can to help them live a fun and active life. The more you use the less you lose! The importance of using muscles and keeping the motor neurons active is essential for people with SMA to remain as independent as possible. Once a motor neuron is lost, there is no way of retrieving it.
The project is run in partnership with The University of Oxford and will be overseen and delivered by Professor Laurent Servais & his team. Laurent is Professor of Paediatric Neuromuscular Diseases at the MDUK Oxford Neuromuscular Centre and Invited Professor of Child Neurology at Liège University.